Kevn holds court

Kevin has been visited and contacted by so many people it is wonderful to know that he is in so many lives and will be remembered by so many. He is really enjoying all the attention. He would never admit it but he loves to be the center of attention. When he is sitting or laying on his side and everyone else in the room is standing or sitting await ting his response I wonder if I should get him a tiaerra and scepter to anoint the chosen ones. I would give him a sward but I would easily end up on the wrong end of that situation! He is feeling the infection proceed up further into his abdomen and feel the bubbles from it . The pain is mainly on his right side, and lower region. I have asked him if he is changing his mind and he assured me no. He is convinced he wont last past Tuesday. I told him he has never been on time in his life so what makes him think he will be now? It is almost 10 am and he is still sleeping but needs to eat breakfast, so I am off to do his bidding.
Kenny

Kevin comes home

Kevin decided on Wednesday to stop all treatment for the tumor and the infection. Holes were found in his colon, and would require a colostomy. The recovery would have taken many months and possibly never be complete. He came home yesterday with Hospice care. He reached this decision after much thought, and he wants to have the most quality with the time he has left. Many will disagree with this decision. That is your prerogative. This is what Kevin wants. He is so week from the infections, tumor, and medications that he is not able to do most of the things that he enjoys. This has been a terrible and wonderful 20 months. He wants to talk and visit, but please understand his energy is low and this is effecting his speech. He can not always speak on the phone. I will try to keep this updated daily, no promises. When the time comes he will be at home in our bedroom.
I will post the final arrangements when they are made.

To the Hospital AGAIN!!!

Kevin returned to BJC today. He is having drainage that aperars to be coming from his colin into the inside of the wound. This has been suspected to be the cause of the infection and now it may be found He is in good spirits and feels as if the infectin is starting again. He is exhausted from all of this and is feeling as if the problem is not fixed and soon he is unsure of the posibilities. He is considering a colostomy if it would help with the pain and infection. The tests will start tomorrow and he is ready for the outcome whatever it is.
Kenny

Very long day

Wednesday turned out to be very long day, from 8-6. It took Kenny and I our friend Dave, who spent the day with us and who we are very greatful for his help, to get back in the house. The last appointment of the day was with Colo-Rectal surgeon and even with the Perocit, I was in pain from the exam. I am scheduled for out patient surgery on 9/3/09 to remove half of the internal Warts. At least they didn't notice any open wounds. We recived the MRI results in the mail today, they didn't have the results on Wednesday. It is still showing growth but not very quickly. On 2/11/09 it measured 2.8 x 1.2 cm and on 8/12/09 it measured 3.5 x 2.1 cm.

Doctors

We visited with the Urologist yesterday, the wound is healing and I was able to get the catherader taken out (hurrah!!). The original wound is completely healed and the new incesion has closed about 50%. Tommorrow I have an MRI, blood work, Oncologist appt, and the first appt with Colo-Rectal surgon since the hospital. They think I might have a fissure in my rectum that is contribuiting to the infections. My immune system is still whacked out enough that either I have inernal hemmoroids or warts. I have been sleeping alot this time around and it appears to be helping with the healing process. The speach therapy I took in the extended care facility has really paid off. Other than just before I take my meds my speech is clearer. We will not be done with appointments until late tomorrow so I will post the results of the MRI on Thursday.

I am back!!!!

I am finally awake and feel up to doing a post. The wound has continued to heal and I will get the catherder out Monday (hurrah!). I want to thank everyone who has called are stopped by. That's all for now.

Kevin is healing more every day. He is sleeping a lot the last couple of days, but I believe it is due to the wound healing and just over doing it. He is only taking one perkaset to do the changes. Thursday night his hip and shoulder were bothering him so he took a paing killer to help him sleep. We have our routine now and that is what works best for us. Deviatiion from the morning schedule is frought with uglyness.
Kevin goes to the Doctor on Monday, this is the GP so not much will happen. Next Monday he goes to the Urologist and gets the cathater out! Then that Wednesday we see the Oncologist, that entails an MRI, and bloodwork. We should also have an apointment made for the Colal Rectal visit after the Urologist.
All in all everything is going well. Ther are always a few bumps along the way, but we ;were both prepaired for the realities of what his care would entail this time around. This realistic thinking has helped to keep our expectations in check. Nothing worse than expecting far more that you will actualy recieve. Kevin is really being realistic about this. He no longer acts as though I am a qualified nurse, and does as much for himself as he can. I think this is very good for him. He needs to keep as much indepedence as possible. His speach is doing excelent also. The speach has made a huge imporvement to his whole outlook.
Kenny