Little steps forward add up

I never realized how true this statement was until the last month. This infection took so much out of me and I was in bed for so long that I lost so much of my strength. Now it is a daily challenge to get back into my routines. I have been getting up for lunch and dinner and doing laps around the house to build my endurance back up. So far I can do three or four laps twice a day before I have to sit down.



The wound is healing and it less painful when I move, walk etc. I still use the pain pills only during the daily dressing change. This is a painful process involving cleaning and packing the wound with gauze, since they want the wound open so it can heal from the inside out. Kenny has been doing a good job of taking care of me. It would help if I could speak better and he would take the time to listen to the entire sentence, but some some things never change. Still I am grateful for such caring and loving partner.

I am home and up!

Just a quick note to say that I am home doing well. I still sleep a lot and I am having difficulty getting around. But is does feel really good to be home!!!!

Kevin

Kevin returns home. Kevin was released from the hospital today. He is resting comfortably and feeling much better. The doctors are saying that it was a Urinary Tract Infection. They are giving this as the cause because all the tests have come back negative. He goes to the Oncologist on Wednesday for the MRI results.
Kenny

Kevin was readmitted to the hospital today for a temperature. The wound site does not appear to be the source. Current logic is the catheter caused a urinary tract infection. He was pretty out of it with all of the pain and seizure medication today. I left the hospital around 9:30 and he had a temp of101. The doctor ordered some Tylenol and to watch it. He is in a tempera ward until a room can be found for him on the neurological ward. He has started to have some type of seizure or possibly a muscle spasm caused by the deteriorating of the muscle in his right leg. I will keep everyone informed as time allows. He is currently in room14342 at BJC.
Kenny

Kevin is home! He was released Saturday the 28th and got home about noon. He is resting comfortably. Keith and Doris helped to get him home. They stayed with him while I ran a pain prescription to Walgreen's. Dave came over about 5 and stayed with Kevin while I picked up his meds, and went to Outback to get our dinner. Dave stayed and we watched an old movie "Dear Ruth" it was very funny. Kevin slept through the night and the cats were unusually nice and wanted to see what was going on. They have been a lot better accepting him than I thought.

The assessment nurse came this morning. I should have known that what the BJC extended care told us was too good to be true. The nurse will visit times a week and no aid was scheduled. Ellen the intake nurse said she would get an aid a couple days a week. Kevin goes to the Urologist tomorrow and we will know more then. I will call the oncologist tomorrow and see when he wants to see Kevin again and when he will be able to start treatments again.
Kenny

Kevin is coming home on Saturday 3/28 unless something changes in the next 24 hours. He will be in a hospital bed. The bed should fit in our bedroom. He has also ordered a wheelchair, I think he is planning a Camile on me. He will still need a nurse to change his dressing once a day. BJC home health will be doing this. Next week is filled with doctor appointments and getting use to the new routine. Kevin will resume blogging after tomorrow.
Kenny

Kevin is suppose to be released on Saturday March 28. The rest of the details are not yet finalized. He should be coming home in the afternoon. He will still need daily nursing visits to change his dressing, and help with a bath. He has been deemed as needing 24 hour supervision. I get to be the supervisor! He will need a hospital bed and other special items for about 2 weeks. He goes to the Urologist on Monday, and his regular doctor on Tuesday. Then we will contact the oncologist to see about resuming his treatment.
He is feeling much better and is looking forward to coming home. I think the cats will need to welcome him home in their own special way. They have become use to living without Kevin, so they may or may not be happy about his return. I think Max will look at the hospital bed as a new launching pad for higher points to conquer.
I will keep updates as they come.
Kenny